So, it has been almost two weeks now. I had a nice week last week with my mom, she drove me around and kept me company. I wasn't the most fun to be around (steroids make me a cranky thing), but she was a great sport. At this point, I'm feeling pretty normal physically. My neck is still a little stiff and I still have a hard time getting comfy at night, but sleeping is getting better as I ween off the 'roids. I'm looking forward to being all done with steroids by the end of the week. There may well be more in the future with the radiation, but I'll deal with it when it comes.
Keith and I headed to UCSF today to see the nurse practioner who works with my neurosurgeon. She took out my stitches and answered some questions for us; I have a couple of titanium plates in my head. They cover up the holes they drilled in my skull and keep things all in place. She also told me that I am ok to drive (yippeee!) and I can go back to work part-time (although I need to be careful not to overdo it).
The next step is to see the radiation oncologist in a week. She will talk us through her recommendation. There are several different possibilities as to how to proceed with radiation and from what I read there is a lot of debate about what the best approach is. Of course the approach will be tailored to my specific situation and I have to tell you I'm really curious to hear what the experts at UCSF recommend!
OK, so here's a photo of my frankenstein like stitches...I'll spare you the more bloody pictures when I still had a drain in.
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