Tampilkan postingan dengan label stigma. Tampilkan semua postingan
Tampilkan postingan dengan label stigma. Tampilkan semua postingan

Do Celebrities and the Media Combat or Perpetuate Stigma Around Breastfeeding?

Diposting oleh good reading on Kamis, 08 Agustus 2013

This week's guest post was written by Jennifer Breaux, DrPH, MPH, CHES.  She is an Assistant Teaching Professor & Director, Undergraduate Education at the Drexel University School of Public Health.  Her work is focused on maternal & child health, nutrition, and health as a human right.

Over the past month, Alicia Silverstone has entered the public health conversation once again by launching a vegan mother breast milk sharing program through her website The Kind Life.  The program has been featured by several national media outlets.  Although her idea of milk sharing is not a new one, it has reignited arguments and opinions on both sides.  For example, US Weekly ran a short piece about the proposed milk sharing program where it provided the information but did not give an opinion.  Unfortunately, many uneducated and harsh opinions were given in the comments section of this piece.  They ranged from stating that this was a horrible idea that would give babies diseases to questioning why someone would choose to give breast milk in this situation when there is formula.

I felt compelled to write this blog post because issues relating to breastfeeding and breastfeeding policies are extremely near and dear to me both personally and professionally.  The issue is also quite timely considering that August 1-7 is World Breastfeeding Week and the month of August is Breastfeeding Awareness Month.

Combating Stigma
Alicia’s program was first reported on by Good Morning America (GMA) and I was struck by the uncomfortable nature of the anchors when the health reporter presented breast milk on the table.  Seeing the breast milk out in the open resulted in a visceral reaction of unease for some of the hosts.  I was happy to see the reporter debunk some milk sharing myths like (1) the milk is unsafe, (2) it transmits disease and (3) it is an unnecessary service.  Overall, I thought that GMA did a balanced job of reporting the story.

Perpetuating Stigma
While stories like that on GMA  (in which a medical professional reinforced the safety of breast milk sharing) can help combat stigma, stories like the one in Life & Style can perpetuate it.  The Life & Style magazine ran a story with a quotation by TV host Wendy Williams who basically equated milk sharing with slave nurses and the Civil War.  

The roots of milk sharing date back to wet nursing and this practice actually dates back to before Christ and has been practiced through the centuries.  Yes, wet nursing did exist during times of slavery but it is also something that still exists today – largely invisible to the general population.  However, it did make main stream news outlets a few years ago when Salma Hayek breastfed a malnourished infant during a humanitarian trip to Sierra Leone.    The whole concept of wet nursing and milk sharing is not new and truly a selfless act that has become a life saving option for mothers who can’t or choose not to breastfeed.

The Facts About Safety
The Human Milk Banking Association of North America (HMBANA) was established in 1985 and remains the largest group to acquire breast milk.  It is a lifesaving organization for premature and ill infants and has locations across the country.  One of the main arguments against something like milk sharing is the spread of disease.  Milk that is obtained for the HMBANA meets rigorous standards.  Milk donors are screened and once the milk arrives at the bank it is:

  • Pasteurized to eliminate harmful bacteria,
  • Lab tested to make sure the milk is safe and free of any communicable diseases that are able to be spread in milk, and
  • Once it is ruled free of any cultures, the milk is able to be shipped to recipients

These standards enable parents to give donated milk knowing that it is safe and what is best for their infant.

That being said, there are informal milk sharing programs that are not regulated; the milk does not go through the rigorous testing done by HMBANA, which could pose a public health risk for those receiving the milk.  However, those who choose to participate in these networks are aware of the risks and feel that the benefits provided by breast milk outweigh possible consequences because the amount of external substances absorbed in breast milk is quite small.   An additional reason that families may choose this alternative route is cost.  Babies drink A LOT of milk and to get certified milk from HMBANA for the first year of life is extremely expensive and is only covered by insurance under certain circumstances.

A Call To Action
We, as a society, have opinions on these types of breastfeeding programs, but the debate will continue until we deal with the root cause of the need for increased milk sharing - our poor breastfeeding rates.  According to the World Health Organization and the American Academy of Pediatrics, it is recommended that mothers exclusively breastfeed their infant for the first 6 months of life followed by breastfeeding, in combination with the introduction of complementary foods, until at least 12 months of age and continuation of breastfeeding for as long as mutually desired by mother and baby.  In 2012, the national breastfeeding rate of exclusive breastfeeding at 6 months was only 16.3% with certain subgroups falling far below this percentage.

Stigma surrounding breastfeeding and the lack of support on every level will continue to plague this issue. The irony is that the science is clear – breastfeeding has overwhelming positive benefits for the baby, mother and society.

Some of the proven positive health benefits for breastfed babies are reductions in/of:

  • Hospitalization from lower respiratory infections
  • Ear infections
  • Serious colds, ear and throat infections
  • Necrotizing entercolitis
  • Sudden Infant Death Syndrome (SIDS)- after accounting for confounders
  • Allergic disease
  • Celiac disease
  • Irritable Bowel Syndrome (IBS)
  • Obesity
  • Type I Diabetes
  • Childhood Leukemia and Lymphoma

Some of the proven health benefits for the mother (time dependent) of breastfeeding:

  • Decreased postpartum blood loss
  • More rapid involution of the uterus (post childbirth)
  • Increased child spacing (lactational amenorrhea)
  • Possible decrease in postpartum depression
  • Decreased risk of Type 2 Diabetes
  • Inverse between breastfeeding and rheumatoid arthritis
  • Reduction in hypertension, Cardiovascular Disease (CVD)
  • Reduction in breast and ovarian cancer
  • Reduction in osteoporosis

Additional benefits from breastfeeding annually:

  • $13 million in direct health care savings
  • Prevention of at least 5,000 cases of breast cancer
  • Prevention of at least 54,000 cases of hypertension
  • Prevention of at least 14,000 heart attacks
  • Prevention of the three outcomes above result in about $860 Million in health care savings

Breastfeeding is good public health.  Maybe we should start investing more in making sure babies are able to be breastfed and, if not- afford them the ability to receive affordable and safe breast milk.  We MUST stop considering breastfeeding as a woman’s lifestyle choice and view it for what it really is:  an important health issue, a public health issue and a human right.
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A Pop Health Book Review of “In the Kingdom of the Sick: A Social History of Chronic Illness in America”

Diposting oleh good reading on Senin, 25 Maret 2013



In 2009 I read "Life Disrupted: Getting Real about Chronic Illness in Your Twenties And Thirties".  Since the book inspired me personally and professionally, I was delighted that Twitter enabled me to connect directly with the author Laurie Edwards.  I was even more delighted when she asked to interview me for her new book, "In the Kingdom of the Sick: A Social History of Chronic Illness in America".  Since Pop Health focuses on health communication and the coverage of public health issues in the media, we had plenty of mutual interests to discuss!




"The very nature of chronic illness- debilitating symptoms, physical side effects of medications, the gradual slowing down as diseases progress- is antithetical to the cult of improvement and enhancement that so permeates pop culture." 
("In the Kingdom of the Sick", page 34)

Early in the book, I found this quote incredibly powerful.  It is true.  Our society values and spotlights those that overcome adversity- those that inspire us- those that beat the odds.  Before his fall from grace, we can all remember the worldwide cheering for Oscar Pistorius- making history last summer for being the first double-amputee to compete in the Olympic games.  Edwards highlights those societal values in her book by drawing on the imagery found in many commercials for breast cancer research and fundraising.  Those commercials show an unforgettable image, a "cancer survivor triumphantly crossing the finish line in her local fund-raising event surrounded by earnest supporters."  That triumphant image is a far cry from what Edwards and colleagues term the "Tired Girls" (i.e., female patients suffering with "invisible illnesses" like fibromyalgia, chronic fatigue syndrome, and migraines).  "The Tired Girl stands for so much that society disdains:  weakness, exhaustion, dependence, unreliability, and the inability to get better" (page 103).

The good news is that many of the "Tired Girls" (and Guys) are getting connected and getting empowered.  Edwards dedicates a significant portion of her book to the discussion of "patients in the digital age."  She describes the emergence of "e-patients" (those that are empowered, engaged, equipped, enabled) and how they are using technology to actively participate in the development of their care plans, connect with patients with similar diagnoses, give voice to their experiences, advocate for policy change, and debate controversial topics like vaccinations.

As a public health professional with significant interest in health communication, I was fascinated by a recurring theme that Edwards highlights from these conversations among empowered patients and writers:

"How does language influence the illness experience?"          

The reader is led through an intriguing discussion of the use and implications of terms such as:

  • Illness vs. Disease
  • Illness vs. Chronic Condition
  • Illness vs. Disability
  • Military Metaphors (e.g., "the battle against disease")
  • Chronic Pain Patient vs. Patient with Chronic Pain
  • Healthy Disabled vs. Unhealthy Disabled
  • Patient (does it connote passivity?)

"In the Kingdom of the Sick" is a fascinating read for anyone with a personal and/or professional connection to chronic illness.  It begins by giving you a strong foundation in the history of illness, research, and patient advocacy movements.  It then challenges you to consider the impact of advances in patient rights, science, communication, and technology on the incidence, treatment, and perception of chronic illness.  I highly recommend this book to my Pop Health readers, friends, and colleagues.

If you are interested in connecting with Laurie Edwards:

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Rent The Runway Rocks Real Non-Airbrushed Models: Us!

Diposting oleh good reading on Rabu, 24 Oktober 2012


Like many of you, I have tried ordering clothes online.  And it never goes well.  They are always too tight or too long.  They immediately make you feel bad about yourself.  And of course- it is a huge pain to have to pack it up again and mail it back.  And after all that- you still don't have anything to wear!!  Weird, right?  The clothes looked great in the pictures.
 
The frustration of online shopping is a symptom of a larger problem.  Many fashion lines are not made to fit the average woman.  Rader Programs, a group of  eating disorder treatment facilities, estimates that the average model weighs 117 pounds at 5'll and the average woman weighs 140 pounds at 5'4.  No wonder my purchases are too tight and too long!
 
However, I'm feeling optimistic about change being possible in the fashion world.  As of last week, Rent The Runway, an online service that lets users borrow current season high-fashion, has expanded their  use of real women as models on their site.  Users can upload pictures of themselves in the clothes, and include details about their height, weight, and chest size.  The site will also have the capacity to allow users to search for women of similar body type, so that they can see how the clothes actually fit.  I think this is fantastic.  Not only will it hopefully cut down on the dreaded returns, but women will see models that look like them.  It can reduce the shame and stigma that many women feel for lacking the 117 pounds at 5'll "ideal".
 
This initiative follows what I hope is a pattern of push back on pop culture for upholding women to unrealistic ideals that may lead to unhealthy body image.  For example, we are seeing opposition to magazine airbrushing.  Earlier this year, an ambitious eighth-grader put the pressure on Seventeen Magazine to review its policies on airbrushing and consider the impact it could have on young readers.  Her online petition led the magazine to sign an eight-point "Body Peace Treaty", which outlined a commitment to never change models' body or face shapes. 
 
We are seeing celebrities (especially recently!) disclosing their battles with eating disorders- often discussing the pressure they felt being in the entertainment industry.  Over the past few months, we've heard from Katie Couric, Nicole Scherzinger, and Stacy London.   Last year, Pop Health reviewed Portia De Rossi's book- Unbearable Lightness, which discussed her life-threatening eating disorder in much detail. 
 
I hope that we are continuing to see a shift.  I hope that there is less stigma in disclosing or discussing body image concerns and eating disorders.  I also hope that the public continues to make their voices heard...whether they are fighting the magazine airbrush or the high fashion gown that will look terrible on anyone under 5'10.
 
What do you think:  With the initiatives above and their predecessors (e.g., the Dove Campaign for Real Beauty)- do you see evidence of a shift in pop culture from "thin" to "real women"?  What else needs to change to keep this initiative moving forward?
 
 
 
 
 
 
 
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Anti-vaccine ads on Delta planes; Magic and Ellen as celebrity champions for HIV/AIDS prevention...and more- What Am I Reading This Week?

Diposting oleh good reading on Senin, 14 November 2011

New pop culture and public health stories to check out this week:

1. Darrell Hammond of Saturday Night Live fame reveals that child abuse led to alcohol/drug use and cutting. He details the horrific abuse in a new memoir, "God, If You're Not Up There, I'm F*cked".

2. Fellow Boston University School of Public Health alum Elizabeth Cohen reports on the 20th anniversary of Magic Johnson's announcement that he is HIV positive. His announcement had an incredible impact on the public's health- both in terms of reducing stigma of those diagnosed and proving that the diagnosis is not always a death sentence.

3. Delta airlines is seeing backlash from public health organizations and other flu vaccine advocates after airing a 3-minute PSA from the National Vaccine Information Center that describes alternate ways to avoid the flu (besides getting the flu shot).

4. Ellen DeGeneres is named global envoy for AIDS awareness. The hope is that Ellen's enormous platform (from both her TV show and social media channels) will allow her to reach millions of people with the prevention message. Ellen is a partner in other important public health issues, for example- bullying prevention.

5. This week, Evelyn Lauder passed away from Ovarian Cancer. Evelyn was one of the powers behind the creation of the pink ribbon campaign for breast cancer awareness.

How about you? What are you reading this week?
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Miami Dolphin Brandon Marshall's New PSA for Borderline Personality Disorder

Diposting oleh good reading on Rabu, 26 Oktober 2011

In July 2011, Brandon Marshall revealed that he was diagnosed with Borderline Personality Disorder (BPD). According to the National Education Alliance for Borderline Personality Disorder, this serious mental illness centers on the inability to manage emotions effectively. The condition which has strong heritability (68%) and a high suicide rate (10% of adults with BPD die by suicide), produces symptoms such as impulsivity, anger, and chaotic relationships.

When Brandon announced his condition this summer, he vowed to become the face of borderline personality disorder. He seems to be following through on his promise, as he has just released a public service announcement (PSA) in collaboration with the National Education Alliance for Borderline Personality Disorder. The 33-second video is primarily focused on 3 key messages:

1. Prevalence of this condition is high (15 million Americans)
2. There is hope (treatment exists for those who suffer and education exists for families coping with the disorder)
3. There are resources: visit the NEABPD website or follow Brandon on Twitter (@BMarshall19) for more information

I like the PSA for several reasons. It is simple with clear messages (above). The messages are delivered both verbally by Brandon and visually with key words appearing on the screen. The "call to action" is clear. Viewers are directed to the NEABPD website and Brandon's Twitter feed for more information.

I also like that this particular health issue has found a champion or spokesperson. Unlike other mental health conditions like depression with several celebrity spokespeople (e.g., Brooke Shields), less is known about BPD and those who suffer from it. Experts in mental illness stigma like Patrick Corrigan state that there are several strategies for reducing stigma...and one of those strategies is called "Contact". Contact challenges public attitudes about mental illness through direct interactions with persons who have these disorders. The contact does not have to be face to face, but instead can occur through a channel like a PSA.

The strategies that I see for improving this PSA are focused less on its composition, but instead on its distribution/promotion. Although the video has been on YouTube for 6 days, it only has 309 views. Announcements about the PSA are located primarily on football blogs (e.g., Shut Down Corner) or BPD specific websites. It does not seem that the PSA has been picked up by mainstream media or health blogs. This is in sharp contrast to PSAs I've spoken about previously on Pop Health, like in July 2011 when I discussed Kim Kardashian's ovarian cancer research spot which currently has 33,431 views.

Readers- please weigh in: which mental health advocacy organizations would have the best "reach" in promoting this PSA? What other strategies could they use for distribution/promotion?
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